Lucas means “bringer of light” and boy, has he done so for our family already. With his piercing blue eyes he’s a sweet, thoughtful, and curious young boy.   In his short years he's already been through a lot with cystic fibrosis.  He takes pills and does breathing treatments daily and takes extra precautions to avoid illness.  As his parents, we love this boy fiercely and enjoy getting to know his light. We also know in our hearts he will bring this special light to our world in a big way. ​​​​​

 

As Lucas’ mom, Christy, a health care attorney, has experienced a new and frustrating side of the industry advocating for his care, enrolling him in a clinical trial, and fighting for insurance coverage of his extremely expensive daily therapies and prescription drugs.  We’ve seen up close the difference the ongoing research can have for CF patients. We can feel the promise of a cure with our fingertips, if we just reach far enough, we know life changing treatments will come to all those living with CF during our lives.